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Live Unlimited

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WHAT CAN I DO?

How can I support the Live Unlimited campaign on social media?

You can do this by:

  • Tweeting your local policymaker about the campaign and PKU
  • Sharing and liking the videos on our YouTube channel
  • Sharing campaign content on Facebook, Twitter and Instagram and retweeting content from others in the PKU community
  • Share the link to our website in your own social media posts
  • Download a signed version of our campaign poster here
How else can I help?

You can help raise awareness of the Live Unlimited campaign and PKU in lots of other ways. For example, request a copy of our campaign pack and share content with your colleagues by email, or bring PKU into the conversation over dinner with friends.

You can email LiveUnlimitedPKU@portland-communication.com if you want to ask about getting involved in a different way.

Where can I get support for my family or someone I know with PKU?

If you want help, support, or guidance, the community of patient groups in your country are best placed to do this. Check out the Patient Support page for information on these groups and the support they offer.

How can I fundraise or donate to the charities involved?

The Live Unlimited campaign isn’t collecting donations or fundraising. However, you can visit each of the patient organisation websites for information on how you can fundraise and support their activity in other ways. You can find their details on our Patient Support page.

Where can I find out more about PKU?

You can find out more about the disease on the About PKU page, or you can contact your local patient group, who’s details can be found on our Patient Support page.

Job code: EU/PKU/0435 | Date of prep: June 2019